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""Retired Teacher Learns a Life Lesson: Ask for Hospice Care Sooner

Wayne, a Janesville native, watched his father and father-in-law have all-too-brief hospice experiences, and he learned a vital lesson: Hospice care should have started sooner.

A retired teacher and principal, Wayne took that lesson to heart.

“We didn’t get my dad in early enough. The last week and a half, we knew he wasn’t going to live. It wasn’t like we ignored that he was at that point, it was that we didn’t want to accept that he was at that point, so we hesitated a bit to reach out,” he remembers.

“When my father-in-law was at the end of life, the family enlisted hospice—but it was the day of his passing. That was WAY too late.”

So when Wayne’s mother, Yvonne, was in failing health, he and his sister asked for Agrace—much sooner. He says, “We got my mom involved as we saw the handwriting on the wall. Hospice was another set of eyes, another support network, not only for her, but for the family.”

yvonne and wesley

Wayne’s parents, Yvonne and Wesley

Comfort, Comfort, Comfort

Yvonne had a couple diagnoses at the end of her life. She was prone to falling out of bed, sometimes prompting her caregivers to consider the emergency room. Wayne explains, “When Agrace got involved, they sent someone to check her out, got her back in bed, bandaged whatever they needed to, and she was fine. The amount of trauma we avoided with my mother was amazing.”

“Our whole focus was comfort, comfort, comfort,” he notes. “Our care plan was our guiding document. Every time we had a question, we asked, ‘How does this fit her care plan?’ Every decision we made revolved around that notion of comfort and was based on that plan. We talked about it; we shared it.”

“One thing that stood out to me was the willingness of the Agrace people to listen to us and respect our wishes. I never felt that what I had to say or the questions I had were foolish. Anytime I called, I always got a response. And I called with some wackadoodle questions!”

Pre-filled comfort medications: “The medicine my mom would eventually need was available to her and had been prescribed with a doctor’s order; there was no lag in time. So when she was in bed and in a bad way, we didn’t have to wait for a doctor,” Wayne remembers gratefully. “When that stuff happens, it’s on a Friday night or a Sunday afternoon, and what kind of help are you going to get at that time of day?”

“In my mind, we hit it out of the park with my mom,” he concludes. “The sooner you get hospice in, the easier it is for the family. We knew she wasn’t going to live, and we didn’t want her to be in pain. We made a promise to my dad to take care of her. That’s what we did, and I have no regrets. None.”


“One thing that stood out to me was the willingness of the Agrace people to listen to us and respect our wishes.”

– Wayne, patients’ son

 

Are you in Agrace’s 91 percent? Tell Us More

""Despite what Miss Manners’ readers may say, thank-you notes are alive and well. We receive them often from families of our patients, in gratitude for Agrace’s care of their loved ones. These kind words make our staff feel so appreciated!

If you’d like to tell us about your positive Agrace experience, you can save a stamp by visiting our web pages “Your Agrace Story” or “Honor a Staff Member.” Please also share your story with friends and neighbors, so they will know what to expect from Agrace when they need us.

Beyond notes and word of mouth, we also measure family satisfaction through required caregiver surveys. The scores are published on the Medicare website, in its “hospice compare” section. Among families who respond, 91 percent say they would “definitely recommend” Agrace, which is seven percentage points higher than the Wisconsin average for hospices and six percentage points higher than the national average.

As we work to give patients and their families the best possible care, we thank you for supporting us with your gratitude, your stories and your heart.

lynne sexten

Lynne Sexten
President & CEO

 

Volunteer Check-ins Ensure Respectful, Personalized Care 

rahul and lynne sitting with group

Rahul (left) visits with Lynn and her daughter while Stacey (center) observes

Since January, Rahul, a software engineer and Agrace volunteer, has been visiting Lynn, a hospice patient who lives at Azura in Verona. They have made a strong connection, even though Lynn is a proud Green Bay Packers fan who enjoys talking about sports—and Rahul cheers for the Chicago Bears.

During a recent visit, Lynn’s daughter joined them and shared stories about her mom’s life, her long career in education and her love of attending football games. They talked with Rahul about Lynn’s favorite activities like gardening, movies and music, and spent time laughing and sharing memories.

rahul and lynne

Rahul and Lynn

On this day, they were joined by Stacey, an Agrace volunteer coordinator. Our Volunteer Services Team regularly checks in with our volunteers to make sure they feel supported and are consistently using their training during their visits with our patients. Seeing volunteers in action helps us stay in compliance with Medicare guidelines, and ensures that care from volunteers is safe, respectful and personalized to each patient. These check-ins also give patients and families a chance to give us feedback.

At a time when trust matters more than ever, Agrace is proud to offer patient-companionship volunteers who are well trained, carefully supported and truly connected to the people we serve.

Learn about volunteering at Agrace
 

You’re Invited to Janesville Service of Remembrance and Butterfly Dedication

agrace janesville butterfly trellisesAgrace invites the Janesville community and beyond to our Service of Remembrance and Butterfly Dedication event, on Sunday, August 2, in the gardens at Agrace, 2901 N. Wright Road in Janesville. Led by Agrace spiritual & grief counselors, this secular event is a time to come together to reflect, find comfort and celebrate the lives of cherished loved ones.

This is a free event. Anyone who is grieving a death is welcome to attend, including those not served by Agrace Hospice Care. We will dedicate new memorial butterflies that were purchased during the past year and existing ones being renewed for another year.

Following the 2 p.m. ceremony, refreshments will be served. Members of our Grief Services Team and grief counselors from the HeartLight Center will lead an optional bereavement art therapy experience.

To learn more or RSVP, contact the Agrace Foundation at (608) 327-7180 or click on the button below

Learn more or RSVP
 

Veteran Who Volunteers Has the Spirit of Service

AJ feucht

AJ Feucht, Agrace Volunteer

Col. AJ Feucht, Wisconsin Army National Guard (ret.), who’s an Agrace volunteer, recently won the (Madison) News 3 Now / Channel 3000 Spirit of Service Award!

AJ’s 30-year military career included deployment to Afghanistan in support of Operation Enduring Freedom, and he continues his legacy of service through volunteer work across the Madison area. With Agrace’s Vet-to-Vet program, AJ connects with fellow veterans receiving hospice care—offering companionship, understanding and support that’s rooted in shared experiences. Congratulations to AJ on this well-deserved honor!

 

""Upcoming Grief Support Groups

When grief feels heavy, Agrace offers a variety of caring options. The groups shown below meet at the Agrace Grief Support Center in Fitchburg.

Journey Through Grief: Six-week guided group for adults grieving the death of a person; $120*. Meets September 14 – October 19, Mondays, 5:30 p.m. – 7:30 p.m.

Spouse/Partner Loss Group: Six- week facilitated support for adults grieving the death of a spouse/partner; $120.*

  • July 9 – August 13, Thursdays, 1 p.m. – 3 p.m. (LGBTQ-specific)
  • September 16 – October 21, Wednesdays, 9 a.m. – 11 a.m.

Bridges Grief Support: Peer-based support for adults grieving the death of a person; $20 per session. Meets the first and third Wednesdays each month, 5:30 p.m. – 7 p.m.

One-on-one support is available virtually or in-person for adults and children grieving the death of a person, in English or Spanish; the cost is $50 per session.*

Pre-registration is required: call (608) 327-7110 or email griefsupport@agrace.org.

*Fees can be lowered or waived, if needed. 

See all upcoming groups
 

Ground Has Been Broken for New Dementia Village

agrace dementia village groundbreaking

From left: Dane County Executive Melissa Agard, Ellen Johnson, Peter Johnson, Agrace CEO Lynne Sexten, Governor Tony Evers, First Lady Kathy Evers and Fitchburg Mayor Julia Arata-Fratta.

More than 200 dignitaries, donors, staff and other friends of Agrace were on hand May 20 for a ceremony marking the start of remodeling and expansion of our Madison campus. This project starts with adding nine new inpatient hospice rooms to the west end of the building. When they are completed this fall, construction will shift to the east end, which will be transformed into the Ellen & Peter Johnson Dementia Village at Agrace.

Nearly 800 people have asked to receive email updates on the project. You can sign up here.

Learn about the Dementia Village
 

shirt and shorts illustrationThrift Store Expands on Madison’s East Side

There’s a lot more elbow room these days at the Agrace Thrift Store at 2402 E. Springs Drive, Madison. We’ve taken over the adjacent retail space so we can display more merchandise without squeezing you!

stack of towels illustration

With more space, we can accept more donations. Please drop off your clean, gently used adult clothing and shoes, kitchenware, linens, games, books and more. See details about what we can and cannot accept here.


""We’re 20! Our Madison–West Agrace Thrift Store on Junction Road is celebrating 20 years in business this summer. Thank you for supporting this store with your volunteer hours, donations and purchases.

 

refreshments and decorations honoring doc rockHonoring Doc Rock’s 100th Birthday

The late Dr. Bill Rock is a legend at Agrace. As our first medical director, he cared for patients, mentored our staff and changed the Madison health care scene. He was a passionate hospice proponent from 1984 until long after his 2012 retirement. On April 22, what would have been Doc Rock’s 100th birthday, his son John and other family and friends visited Agrace to offer treats for our staff, reminisce and honor his memory. Thank you to the Rock family for keeping Doc Rock’s memory alive at Agrace!


group of agrace cnas with appreciation bagsGiving Thanks to our CNAs

On Agrace Giving Day, 15 volunteers assembled 100 bags filled with snacks, small comforts and notes of appreciation that were given to Agrace certified nursing assistants, including those pictured here. Each day across southern Wisconsin, 100+ Agrace CNAs visit our hospice patients and families to help them with activities of daily living and much more.

 

Upcoming Golf Outings: Register Today

Agrace’s events raise funds that strengthen all our health services across southern Wisconsin. We thank all the local community members and businesses who help make these events a success. Please join us for the fun!

""

A Round with Agrace

Trappers Turn, Wisconsin Dells 
Thursday, July 9

A summer golf event in Wisconsin Dells. Join us for 18 holes of golf on one of Wisconsin’s most beautiful courses. Not a golfer? Join us for happy hour and appetizers. 

Register here
""Agrace Golf Open

The Legend at Bergamont, Oregon
Monday, September 14

This long-standing golf tradition always sells out; reserve your spot to sponsor or golf with us here.

Register here