Visitors must self-screen for COVID-19 symptoms and sign in at the reception desk before they can visit Agrace’s hospice inpatient units and other areas of our buildings.
Visitors must wear an N95/KN95 or Agrace-provided surgical mask while at Agrace. Visitors must wear a face mask any time they are interacting with an Agrace employee. The only times visitors may be without a mask are if they are eating or drinking in the cafe, in a patient room without Agrace staff present, or in an enclosed space (like a family kitchen) AND everyone is up-to-date with COVID vaccinations, including boosters, if eligible.
If you have any questions before visiting Agrace, please call (800) 553-4289
Pediatric Hospice Care
When your child has a serious illness, you spend so much precious time going to stressful appointments and looking for answers. Let Agrace make each day a little better, a little easier, for you family.
Agrace’s pediatric hospice care program, Agrace for Kids, is specialized care and support for children with serious illnesses, and their families.
We help children (birth to age 20) stay comfortable at home when their health is declining due to a life-limiting illness, such as:
a disorder affecting the nerves or muscles,
a severe congenital anomaly (condition that existed at birth)
a heart disease or defect, or
a genetic disease.
We come to you, even after “business hours,” so your family can spend time together at home, rather than at the clinic or in the hospital. Often, children can have support from Agrace while they continue to see their current pediatric team.
We were able to focus less on Savannah’s medical needs and more on showing her love, in the comfort of our home.
— Rachel Longley, mom of an Agrace patient
Your Care Team
When you enroll with Agrace for Kids, your primary care team is a registered nurse (RN) who knows you and your child, and a social worker who helps find the community resources and financial support you need. They work together with you and your child’s other caregivers, including your pediatric doctors and specialists.
You can count on Agrace for:
Periodic home visits to help relieve your child’s pain, breathing troubles and other discomfort
Help getting the medicines, special medical equipment and supplies your child needs to be comfortable
Teaching tips and emotional support to help you care for your child
24-hour-a-day phone support from a nurse, and home visits for urgent needs
Regular coordination with your child’s doctors, other personal-care workers, therapists and school
Flexibility, understanding and problem-solving
You can also ask for:
Visits from a spiritual & grief counselor
Visits from a nursing assistant (CNA) to help with bathing and feeding
Respite care for your child at Agrace’s inpatient unit in Madison, to give you a short rest
Visits from trained volunteers
When families invite us into their home, they want people they trust, who know them and understand what their child needs.
— Beth, Agrace RN
Who Pays for Agrace?
Our pediatric hospice services are usually paid for by Medicare, Medicaid and most private insurance plans. Our staff will work with your insurance carrier to learn what coverage is available to you.
If you do not have enough insurance coverage and can show financial need, Agrace’s “Care for All” program may be able to help pay for your child’s care. Your Agrace social worker can help you apply.
Why wait another day?
With Agrace for Kids, your child—your family— can spend more time comfortable at home. Why wait another day?
To request an informational meeting or talk with a nurse,