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‘Goals of Care’ Talk Uncovers a Wish to Finish Quilts

Jerry and Pat with quilts

Jerry and Pat with the twin quilts

Pat Ronspiez, an Agrace Hospice Care patient, was declining steadily. New fractures to both shoulders meant the end of a favorite hobby, quilting, but Pat had unfinished business.

During a home visit in September, Pat’s hospice RN case manager, Rachel, asked about her “goals of care.” Because hospice care centers on patients’ goals, this was a very important discussion.

  • They talked about Pat’s daily care and decided to add CNA (certified nursing assistant) visits three times a week, so she could continue to shower regularly.
  • Rachel suggested rearranging furniture so Pat could spend time in the living room with her husband, Jerry, and not go down the two steps to her recliner.
  • Pain and nausea had been a problem, so they discussed ways to manage those symptoms.
  • Rachel also offered information about in-home personal care that might help Pat remain at home longer.

These decisions helped address Pat’s dignity, comfort and safety in her final weeks. But the talk also uncovered another goal. Asked “What is important to you during this time?” Pat first replied, “Leaving my husband worries me.” Then she added, “Oh, and finishing my quilt.”

A Quilt Divided, Reunited for Comfort

Having given away handmade quilts for decades, Pat was working on one last quilt—to keep. It was queen-size, but Pat wanted to divide it into two twin-size quilts, one for her hospital bed and one for Jerry’s bed. The new tops needed to be stitched to backing, with batting between the layers for warmth.

Agrace's Wish Program and grief support services rely on community donations. Want to help?Knowing Pat was unable to do the work herself, Rachel contacted the Agrace Wish Program. Later the same day, the quilt top was on its way to a local quilting shop. Within a week, the two smaller quilts were finished and returned to Pat. “It’s what she wanted,” Jerry says. “The quilts came out real good.”

After Pat died at Agrace’s inpatient unit a few weeks later, there was a traditional procession from her room. Jerry says, “When they took her out from Agrace, they had one of the quilts over her.” He adds that at Pat’s funeral, the small quilt was also draped over her casket.

Having served those honorable purposes, the two smaller quilts were recently reunited by quilters at Jerry and Pat’s church—into one comforting covering for Jerry.

 

Celebrating Your Support

Lynne Sexten photo

Lynne Sexten, President & CEO

As this year ends and we turn the page to Agrace’s 45th anniversary in 2023, I am humbled by the  support of the people in the communities we serve.

Agrace exists thanks to the vision of a group of dedicated volunteers who banded together to create a more comfortable, peaceful way to die. As we’ve grown and evolved over the years beyond our hospice roots, we have strived to be a safety net for elders in our communities, to collaborate with local hospitals so people with life-limiting illnesses can be cared for in the comfort of their own homes, to ease suffering of people of all ages, and to be an employer that supports the best interests of our staff. In other words, to live up to the vision conceived by our founders.

The work is hard but rewarding. On top of that we sometimes face challenges from new competitors whose main purpose is to maximize profits rather than putting patients first.  These unscrupulous providers give hospice a bad name and they often close shop quickly because they cannot match Agrace’s quality. To be sure, the impact we’ve made on nearly 70,000 individuals, and their families, since 1978 keeps us moving forward with gratitude and purpose.

Thank you for being a part of our story.

Lynne Sexten
President & CEO

 

Fun Volunteer Roles: Join Us at the Home Store or Janesville Thrift Store

Agrace Thrift Home Store volunteer

Pat Stark, Agrace Thrift Home Store volunteer

Seeing a coworker find peace after a death by volunteering with Agrace, Pat Stark knew she also wanted to volunteer when she retired.

For the past 17 years, Pat has worn many hats at Agrace: She’s volunteered at our Madison office and visited with hospice patients in their homes. And now, she can be found at the Agrace Thrift Home Store in Madison.

“It’s a lot of fun volunteering here,” says Pat. “I get to meet the most interesting people—other volunteers, shoppers and donors. I am very impressed with the things people donate because they know it goes to a good cause!”

Volunteers are always needed to help with staging and displays, customer service and cashiering at all our thrift store locations, especially the Agrace Thrift Home Store in Madison and our Janesville thrift store.

 

For Martha, Unexpected Grief Support Is a Sign of Grace

Both the beginning and the end of Martha and Bill Boyer’s 60 years together came as a surprise to Martha. So did the care she received from Agrace.

They met in 1961, in Monterey, Mexico, where Martha was raised. Bill was instantly smitten; Martha was skeptical. But he was persistent. His first gift to her was a butterfly pin and earrings. His second gift—at their next meeting—was an engagement ring.

They married and raised two sons, had successful careers and lived in several other places before retiring to the Dodgeville area 35 years ago. Being bilingual, they volunteered their time to teach and support many of the area’s Latino immigrant families.

Although Bill had been in assisted living for four years, Martha was surprised when his doctor suggested hospice care early this year. Given options, she chose Agrace. She remembers, “Grace is something you receive without deserving it or asking for it, so the name was very comforting.”

“On the first morning, we signed papers, I met your staff who was there, and the nurse asked me to go into Bill’s room. He was in bed (which he never was). I could just tell he was totally at peace. He had oxygen. The nurse was very kind, and she said it was to make him comfortable. She said, ‘Sit, hold his hand and tell him anything you want to tell him.’ So I did, for a couple of hours.”

Then Martha took a break for lunch. “I told Bill, ‘You have some beautiful people who are going to be taking care of you, so you be nice to them.’ I squeezed his hand; I kissed him, and I left.”

But when Martha arrived at home, that same nurse called to tell her that Bill had died. To Martha, it was completely unexpected.

Martha went straight back to Bill’s side, where the assisted living and Agrace staff were waiting, along with her pastor. She explains, “It was absolute grace. I was surrounded by people who cared about me. I have never been taken care of­­­­­­—I do that.”

I assumed you were taking care of Bill, not me

Martha didn’t know at the time that family members have access to free grief support for a year following the death of a hospice patient—no matter how long the patient was enrolled. “I assumed you were taking care of Bill, not me,” she says. “I thought your thing was just to be there when the person died, but it was more than that.

“It was important to me that [grief support] was never pushed. It was offered. The phone calls that came made me feel very comfortable. It was a kind hand being extended.”

When you grow something, you remember

butterflyAs Martha was throwing away materials from Agrace, she noticed a butterfly on them. She called Agrace and was introduced to Stephany Marten, who represents the Agrace Foundation in southwest Wisconsin. Martha explains, “Butterflies are important to us. Bill and I had taken a trip to Mexico to see the butterflies, and it made an impact. We live out in the country, and my beautiful garden is chaotic with milkweed. I learned to go find eggs and caterpillars, and we raised butterflies.”

Steph helped Martha track down butterfly-shaped seed paper to give out at Bill’s celebration of life. “Those seeds will be saved, and a lot of people will plant them,” Martha says. “When you grow something, you remember.”

A memorial butterfly

Martha also purchased an engraved butterfly for Agrace’s Butterfly Memorial in Janesville. “I thought that would be a wonderful way to celebrate Bill,” she says. “Every time I see a butterfly, I talk to him.”

Looking back, Martha says, “The moment that one of your staff walked in with me and told me what I wasn’t hearing—told me what to do—was the most compassionate thing that anybody ever said to me: ‘Sit and talk to him. Tell him whatever.’ I’d never thought about it.

“You didn’t physically care for him, except for a couple of hours. What amazes me is that you follow. I’m astounded, because that is just an amazing, amazing grace that was humbly unexpected.”

 

Carbon Neutral: Another Way Agrace Cares for our Communities

agrace carbon neutral iconBeing resourceful and sustainable are major factors behind Agrace’s decision to become “carbon neutral” by 2025. We’ve planned a series of actions that will help us care for the environment of southern Wisconsin, just as we care for its people.

Climate change caused by carbon emissions creates risks to human health. Agrace is choosing to reduce our “carbon footprint” over the next three years through actions such as installing solar panels, purchasing locally generated power from renewable sources, buying energy-efficient equipment, and allowing staff to work remotely when it’s practical.

Learn More About Our Plans
 

United Way Honors Volunteer and Agrace

Agrace volunteer received United Way award

Zoe Toltzien, Agrace volunteer, and John Hromyak, Agrace Foundation director

In August United Way of Dane County recognized both Agrace and one of our young volunteers at its annual Community Volunteer Awards.

Zoe Toltzien, Agrace volunteer, received the 2022 Goodman Gemstone Youth Award. Zoe volunteered weekly at Agrace’s hospitality desk, greeting and guiding visitors during evenings and weekends.

Additionally, Agrace received the 2022 Kathy Martinson Nonprofit Award, presented to one nonprofit organization for demonstrating leadership and innovation in transforming the local community.

 

Life of the Party: Celebrating Arlene’s 102nd

Throughout her life, Arlene has been admired among her friends for hosting wonderful cocktail parties. As her 102nd birthday approached, her Agrace Hospice Care team wanted to match Arlene’s style! The Agrace Wish Program provided Arlene a birthday tiara, delicious raspberry sorbet punch and petit fours at her long-term care community in Cottage Grove. Her friends wore party hats, ate cupcakes and sang “Happy Birthday.” She rang in her 102nd birthday as the continued queen of celebrations!

 

New Resource: Care Tips for Families

To help families of our hospice patients care for them between Agrace’s visits, we recently published a new “Care Tips for Families” web page. It has dozens of tips that would also be helpful to anyone caring for a person who is seriously ill or has trouble moving around. Please share this page with anyone you think could benefit.

Learn More

 

 

Light Up a Life, Like Ric and Cathie Johnson

Ric and Cathie Johnson helped Agrace … then Agrace help them right back. As Cathie lived with multiple sclerosis, Ric was her main caregiver—for 30 years. After retirement, they both volunteered at Agrace. As Cathie’s MS progressed, the couple sought support from Agrace Age at Home, then Agrace Hospice Care, and eventually, our grief services.heart and stars graphic

Read More or Make a Gift
 

Agrace Welcomes 17 New Members to Legacy Circle

Agrace Legacy CircleHow will you choose to leave a legacy? This year 17 individuals and families have committed to ensuring the future of Agrace through a planned gift (a donation written into their will or estate plan). We’re honored to welcome them as the newest members of Agrace’s Legacy Circle.

If you are considering a planned gift to Agrace, letting us know now helps us plan to properly receive and use your gift as intended. There are several ways to make a planned gift that can be tailored to both maintain your financial security and support Agrace as your personal legacy. To learn more about supporting Agrace in this way, please contact John Hromyak, Foundation director, at (608) 327-7139.


Thank You for Supporting Agrace’s Events

Thank you for the tremendous outpouring of support this year at Agrace’s events. More than $430,000 was raised to provide personalized care and support, where and when it’s needed, for life’s changing health needs.